=Paper= {{Paper |id=Vol-1276/MedIR-SIGIR2014-01 |storemode=property |title=Designing for Health Exploratory Seeking Behaviour |pdfUrl=https://ceur-ws.org/Vol-1276/MedIR-SIGIR2014-01.pdf |volume=Vol-1276 |dblpUrl=https://dblp.org/rec/conf/sigir/PangVCP14 }} ==Designing for Health Exploratory Seeking Behaviour== https://ceur-ws.org/Vol-1276/MedIR-SIGIR2014-01.pdf
       Designing for Health Exploratory Seeking Behaviour
              Patrick Cheong-Iao Pang1,2, Karin Verspoor1,3, Shanton Chang1, Jon Pearce1
                     1
                         Department of Computing and Information Systems, The University of Melbourne
                                                        2
                                                          NICTA Victoria
                            3
                              Health and Biomedical Informatics Centre, The University of Melbourne
                                              Parkville, Victoria 3010, Australia
                         cipang, karin.verspoor, shanton.chang, j.pearce@unimelb.edu.au



ABSTRACT                                                                 information seeking processes tends become more exploratory
The Internet has become a popular source of health information.          [7][8]. We argue that this exploratory search behaviour applies to
However, in-depth understanding of the information seeking               health information seekers as well. In contrast to executing a
behaviour of online health information is limited. We conducted          search query and reading through the result, exploratory search
an experiment to investigate the information needs and behaviours        involves a series of cognitive learning and query reformulation
of health information seekers. This paper reports on a model of          processes. A more complete picture of the knowledge domain is
behavioural patterns drawn on the experimental results, and              being built in this process. The exploratory process also implies
implications for designing a better user experience for the              the existence of both learning and investigative activities. Seekers
exploration of online health information.                                end up knowing more information than they expected at the
                                                                         beginning. One of our goals is to design a system that better
                                                                         supports such exploration, which traditional search engines are
Categories and Subject Descriptors                                       not designed for.
H.1.2 [Information Systems]: User/Machine Systems – Human
information processing.                                                  In order to understand more deeply the effects on human
                                                                         behaviour of these health information needs, we ran interview
                                                                         sessions and observation experiments with 20 participants. During
General Terms                                                            the observation, the participants displayed diverse behavioural
Design, Experimentation, Human Factors.                                  patterns. Summarised from these patterns, we propose a model to
                                                                         describe the seeking behaviour in terms of research tactics and
Keywords                                                                 reading engagement. The findings indicate there exists a lack of
Exploratory search, health, information seeking, human behaviour         features in both search engines and health websites to support
                                                                         health information seeking, which is essentially an exploratory
                                                                         search. We plan to build an experimental health website to
1. INTRODUCTION                                                          address these problems in the next phase of our research.
The Internet provides a variety of choices for consumer health
information, from official health websites, private health service
providers, personal blogs, to discussion forums. Studies have            2. LITERATURE REVIEW
shown that lay-people look for health information online when            In this section we draw on the literature to explain what we mean
they encounter health problems [1][2]. While we understand the           by the three phrases: online health information seeking, health
demands of accessing health information on the Internet, there are       information needs and exploratory search. These concepts are
few studies investigating the information needs and the                  guiding the direction of this research.
characterising information seeking behaviours of these seekers.
Our research aims to bridge this gap.                                    2.1 Online Health Information Seeking
                                                                         Health information seeking on the Internet is different from other
Search engines are the de-facto primary method of finding                types of searches in many ways. Lay-people usually have only
information on the web. This also applies to health seekers.             limited knowledge in the medical domain [9], or face difficulties
However, the user experience in the health context is often not          in utilising technical or medical language for searching [4][5]. On
satisfactory due to a number of factors, including the nature of         the other hand, dealing with health issues is stressful and
health information, the level of knowledge possessed by the              uncertain and very likely to demonstrate a different information
seeker, and the skill of formulating search keywords [3][4][5][6].       need [10].
When dealing with unfamiliar and unknown problems, or                    A study showed 72% of U.S. Internet users have tried to access
involving a task for which the goal remains unclear, the                 health information online [2]. Seekers look for a broad range of
                                                                         health information, which includes disease information, causes
                                                                         and treatments, diet information, health lifestyles, etc.
                                                                         [1][2][9][12][13][14][15], and in various stages of a health
                                                                         problem [16][17]. The diverse types of health information
                                                                         demanded reflect differences in information needs which result in
Copyright is held by the author/owner(s).
                                                                         different seeking behaviour.
MedIR 2014, July 11, 2014, Gold Coast, Australia.




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2.2 Health Information Needs                                               append to a Wikipedia page on urination problems and their
Information needs arise when people realise their existing                 symptoms. The first scenario was designed with the aim of
knowledge is inadequate to satisfy their goal. Finding information         observing seeking behaviours for explicit recognised needs,
is an attempt to bridge a knowledge gap. A knowledge gap                   whereas the second targeted for unrecognised needs with a more
appears whenever people perceive there is not enough information           vague description of a health problem.
in their minds and as a result they will start searching for               Interviews were transcribed and reduced to a number of codes
information to fill the blanks [11]. This process is also known as a       iteratively [22]. Content that was relevant to health information
sense-making process [18].                                                 seeking behaviours were organised into themes. Themes were
                                                                           derived with a thematic analysis approach [23]. Screen recordings
Alzougool et al. investigated different information needs in the
                                                                           were reviewed manually. A navigation graph was built for each
health context [10][19]. They propose that health information
                                                                           participant to describe the web activity patterns in each session.
needs can be further classified into recognised and unrecognised
needs. Cartright et al. [20] argued that health information seeking
can be split into two partitions – evidence-based and hypothesis-          4. RESULTS
directed. Through analysing queries in search engine sessions,             In total 20 participants completed our lab experiment (11 male; 9
they clustered the foci of searches in terms of causes, symptoms,          female). In terms of identity, they comprised 8 students, 9
remedies, or combinations of any of these. This could be useful to         university staff and 3 external participants. The age distribution is
predict the information needs of exploratory health seekers.               listed in Table 1.
                                                                                       Table 1. Age Distribution of Participants
2.3 Exploratory Search
Exploratory search involves learning and investigation in addition                    Age Group             N           Percentage
to lookup efforts, where the seeker interacts with information                           21-30               8              40%
systems to retrieve a wider range of information [7]. Exploratory                        31-40               6              30%
search can be found when the individual tries to address
unfamiliar or unknown problems [21], as may be the case for                              41-50               4              20%
health-related concerns. White and Roth add that people who are                         Over 50              2              10%
unfamiliar with the domain of their goals, or unsure about the
ways to achieve their goals, or even unsure about their goals, will
engage in exploratory search [8].
                                                                           4.1 Motivation for Exploratory Search
3. RESEARCH METHOD                                                         One of the themes emerging from the interviews regarded the
Previous research about health information seeking behaviours              motivation for exploratory search. Not every search about health
does not capture well the actual patterns of the interactions among        topics is an instance of exploratory search, however, we have
search engines and health websites. The aim of this experiment             observed that both recognised and unrecognised information
was to form an in-depth understanding of information needs and             needs motivated people to perform exploratory search in our study.
the patterns of related information seeking behaviours. We                 Firstly, searches triggered by recognised needs are found to be
arranged sessions with individual participants in which we                 more exploratory. For example, participants with health problems
interviewed them about their experiences on health information             or those diagnosed with a certain illness. The need is also
seeking, and then gave them two tasks to carry out. We recorded            demanding if the issue is related to people’s loved ones. They had
the interviews and screen activities for further analysis.                 a clearer mind about what information is helpful for the scenario,
The study was carried out from October to December of 2013.                and possessed explicit information needs on aspects such as
Posters were presented in various locations across the university          treatments and remedies. In this case, the recognised need mainly
for recruiting participants. E-mail invitations were sent out to           has the purpose of helping to understand the complete picture of
encourage participation. Participants were also allowed to invite          the situation or getting more options for facing the health problem.
potential participants to our study through their connections.             The seeker is persistent in trying different ways to discover and
Recruitment continued until data saturation was achieved. This             read information as well.
experiment was voluntary and no incentive was given to
                                                                           Unrecognised needs were observed to stimulate exploratory
participants for the study.
                                                                           search as well. People do not have a clear target, and therefore
Each study lasted about an hour and consisted of three sections:           tend to approach different sources to make sense of the
the first section was a semi-structured interview about their past         information – this is illustrative of exploratory behaviour during
experiences of finding health information on the web; participants         the search. Examples include people passively encountering
were then given a computer to find online health information for           contradictory messages, suspecting the validity of the information,
two pre-defined tasks in the second part; the last section included        or simply feeling curious about certain information. They seek
another semi-structured interview to help researchers further              additional sources without knowing what exactly is needed nor
understand how participants performed the tasks. We did not                why it is needed. They usually become more open minded to the
restrict the participants to use a specific website or instruct them       information obtained but are still cautious about it to avoid wrong
to use a search engine. To avoid bias, we cleared the home page            information.
and all browsing history in the browser prior to each session. All
interview content and screen activities were recorded.                     4.2 Behavioural Patterns
The search tasks represented two different styles of common                Participants were requested to perform two search tasks in our lab
health scenarios. In one scenario, participants were asked to find         study sessions. For each task, we manually constructed a
information on how to care for a diabetic family member; in the            navigation graph to describe the pattern of the interaction among
other, participants were tasked with identifying information to            search engines, individual web pages and clicks on hyperlinks. 36




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graphs were generated while 4 tasks not completed by participants         Seekers in Figure 1(d) use hyperlinks to discover new information.
due to time constraints on these lab sessions. From these graphs          They choose a small number of good websites (usually large and
we identified four common patterns (Figure 1). During the search          reputable) for examination. In these well-designed health websites,
process of each task, the overall patterns of the individual’s            connections among pages are well-defined and hyperlinks are
activities may contain one or more these common patterns shown            placed in a useful manner. Seekers can trace the related
in the figure.                                                            information through levels of hyperlinks easily and do not need to
                                                                          query the search engine as often as in other scenarios.

                                                                          4.3 Model of Behavioural Outcome
                                                                          From the perspective of enhancing user experience and suggesting
                                                                          design implications, conceptualising the information seeking
                                                                          behaviour is crucial. Drawn on the patterns in the previous section,
                                                                          we build up a model to abstract the behaviour outcome of online
                                                                          health information seeking behaviour (Figure 2).
                                                                                                          Extensive Research   Extensive Research
                                                                                              Extensive




                                                                           Research Tactics
                                                                                                            Low Reading          High Reading
                                                                                                           Basic Research       Basic Research
                                                                                               Basic        Low Reading         High Reading
                                                                                                                Low                  High
                                                                                                                    Reading Engagement
                                                                                                 Figure 2. Model of Behavioural Outcome
                                                                          This matrix presents a combination of seeker’s research tactics
                                                                          and reading engagement. Research tactics represent the eagerness
                                                                          and motivation for finding out in-depth information. For more
                                                                          exploratory seekers, a wider range of information is needed, and
                                                                          thus the extensive tactics represent a greater effort to locate, filter,
                                                                          learn and discover other information within the current knowledge
                                                                          domain. Whereas less research effort will be put for the basic
                                                                          tactics, which often appear when looking for surfaced, easy-to-
                                                                          obtain and easy-to-read information.
                                                                          Reading engagement measures the duration of reading and the
                                                                          intention of absorbing the information. Skimming and reading just
                                                                          the page summary fall into the group of low engagement while
                                                                          pursuing and digesting the information is considered as high
                                                                          engagement.

                                                                          4.4 Guidelines for Design
   Figure 1. Typical Patterns of Health Exploratory Search                Drawn on the abovementioned findings, we propose two areas of
Figure 1(a) shows the simple pattern of executing a keyword               improvements for enhancing the user experience of exploratory
query on a search engine, skimming one of the search results, and         health information seekers. These are (1) assisting the discovery
then finishing the information seeking process. This is common            of new information, and (2) adapting to users’ reading needs.
when the seeker just wishes to have some quick facts. The search
                                                                          The discovery of information within a website is important. In
stops once the information is found.
                                                                          general, health websites collect many articles but we have noticed
Figure 1(b) is similar to (a) in the small number of searches             that seekers are not always able to reach all of them. This implies
performed, but the seeker engages in longer and deeper readings.          a problem of either users not knowing what they want, or that they
The seeker examines the web page returned by the search engine,           cannot effectively use a search engine to explore. As seen in
also follows hyperlinks provided page-by-page and continues               Figure 2, seekers with the basic research tactics stay within a
reading. The duration of reading is longer as the seeker digests          single website rather than utilising a search engine for to look
and absorbs the information. The series of reading continues until        other sites. In this regard, a system that understands their
no more valuable information is found.                                    information needs and recommends relevant information for
                                                                          further reading is preferable.
Figure 1(c) presents not much reading but more query
reformulations. The seeker in this case relies on the search engine       Figure 2 identifies a spectrum of reading engagement, suggesting
to explore new information. Most of the time, he/she tries to skim        that a health website needs to adjust to both low and high reading
through the search results and picks up only web pages that are           levels. In low engagement behaviour, users prefer to skim and
relevant to the information need. Meanwhile the seeker will adjust        quickly read through the articles to determine the usefulness
the query keywords with the information read and submit a new             before committing to a longer reading. In this case, an abstract or
query, if the overall search result is not satisfactory. The query        summary could be provided for their convenience. On the other
reformulation particularly occurs when the user cannot discover           hand, users with high reading engagement may prefer a design
new useful information with visible means (e.g. links) and feels          emphasising readability, such as font size, line spacing, section
the information in the website is exhausted.                              navigation, etc.




                                                                      7
Extensive research seekers (the upper row in Figure 2) generally           [9] Zhang, Y., Fu, W.-T. 2011. Designing consumer health
do not have major problems in finding the information.                         information systems: what do user-generated questions tell
Corresponding to Figure 1 (c) and (d), they illustrate patterns of             us? In Proceedings of the FAC 2011, HCII 2011, LNAI 6780.
putting efforts to discover, locate and filter needed information.         [10] Alzougool, B., Chang, S. and Gray, K. 2013. The nature and
They also spend most of the time to judge the relevance of the                  constitution of informal carers’ information needs: what you
materials, and seek alternatives if the information is not relevant.            don't know you need is as important as what you want to
Both of the two design implications would be beneficial to this                 know. information Research. 18, 1 (Mar. 2013).
type of seekers.
                                                                           [11] Case, D. O. 2002. Looking for Information: A Survey of
                                                                                Research on Information Seeking, Needs, and Behaviour.
5. CONCLUSION                                                                   Academic Press, Lexington.
This paper reports on a lab experiment with the aim to understand
online health information seeking behaviour. From this study, we           [12] Andreassen, H. K., Bujnowska-Fedak, M. M., Chronaki, C.
have identified that a variety of information needs that drive                  E., Dumitru, R. C., Pudule, I., Santana, S., Voss, H. and
exploratory search, and a diversity in behavioural patterns. We                 Wynn, R. 2007. European citizens' use of E-health services: a
have proposed a simple model using two factors, research tactics                study of seven countries. BMC public health. 7, 53 (Apr.
and reading engagement, that is useful for reflecting on user                   2007), 1-7.
behaviour and starting to think about how we can design systems            [13] Bessell, T. L., Silagy, C. A., Anderson, J. N., Hiller, J. E. and
to provide better support for exploratory behaviours. These                     Sansom, L. N. 2002. Prevalence of South Australia’s online
findings sight the directions we could work on to improve the user              health seekers. Australian and New Zealand J. of Public
experience of health information seekers.                                       Health. 26 (Mar. 2002), 170-173.
We will focus on designing a better environment for exploratory            [14] Johnson, J. D. and Meischke, H. 1991. Women's preferences
search in the health context. The next phase of this research is to             for cancer information from specific communication
build a testing health website with the goal on assisting the                   channels. The American Behavioral Scientist. 34, 6 (Jul.
discovery of new information and enhancing reading engagement.                  1991), 742.
A larger scale of user study will be launched to gather feedback           [15] Nicholas, D., Huntington, P., Gunter, B., Withey, R. and
and evaluate the new design elements in this new website.                       Russell, C. 2003. The British and their use of the web for
                                                                                health information and advice: a survey. Aslib Proceedings.
6. ACKNOWLEDGEMENT                                                              55, 5, 261-276.
Patrick Pang is supported by the Australian Federal and Victoria
                                                                           [16] Rutten, L. J. F., Arora, N. K., Bakos, A. D., Aziz, N. and
State Governments and the Australian Research Council through
                                                                                Rowland, J. 2005. Information needs and sources of
the ICT Centre of Excellence program, National ICT Australia
                                                                                information among cancer patients: a systematic review of
(NICTA).
                                                                                research (1980–2003). Patient Education and Counseling,
                                                                                57(2005), 250–261.
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