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  <front>
    <journal-meta />
    <article-meta>
      <title-group>
        <article-title>Older Adults' Perception of Remote Health Management Technology with ADL Recognition</article-title>
      </title-group>
      <contrib-group>
        <contrib contrib-type="author">
          <string-name>Josh Cherian</string-name>
          <email>jcherian14@tamu.edu</email>
          <xref ref-type="aff" rid="aff1">1</xref>
        </contrib>
        <contrib contrib-type="author">
          <string-name>Samantha Ray</string-name>
          <xref ref-type="aff" rid="aff1">1</xref>
        </contrib>
        <contrib contrib-type="author">
          <string-name>Thomas Mernar</string-name>
          <email>mernar.t@gmercyu.edu</email>
          <xref ref-type="aff" rid="aff0">0</xref>
        </contrib>
        <contrib contrib-type="author">
          <string-name>Jung In Koh</string-name>
          <email>jungin@tamu.edu</email>
          <xref ref-type="aff" rid="aff1">1</xref>
        </contrib>
        <contrib contrib-type="author">
          <string-name>Paul Taele</string-name>
          <email>ptaele@tamu.edu</email>
          <xref ref-type="aff" rid="aff1">1</xref>
        </contrib>
        <contrib contrib-type="author">
          <string-name>Tracy Hammond</string-name>
          <email>hammond@tamu.edu</email>
          <xref ref-type="aff" rid="aff1">1</xref>
        </contrib>
        <aff id="aff0">
          <label>0</label>
          <institution>Gwynedd Mercy University</institution>
          ,
          <addr-line>Gwynedd Valley, Pennsylvania</addr-line>
          <country country="US">USA</country>
        </aff>
        <aff id="aff1">
          <label>1</label>
          <institution>Texas A&amp;M University, College Station</institution>
          ,
          <addr-line>Texas</addr-line>
          <country country="US">USA</country>
        </aff>
      </contrib-group>
      <abstract>
        <p>Activities of Daily Living (ADL) monitoring systems have the potential to facilitate Aging in Place among older adults and decrease the burden of care of caregivers. However, limited work has investigated how older adults might perceive the implementation of such technology. To that end, in this work, we conducted semi-structured interviews with older adults living in a Continuing Care Retirement Community (CCRC) before and after they participated in a week-long implementation of a simulated ADL monitoring system. We describe the thematic analysis of these interviews, finding that residents are open to such a system but have significant concerns over privacy and the specifics of its implementation. Based on this analysis, we present considerations designers should take into account when developing intelligent user interfaces that leverage ADL monitoring.</p>
      </abstract>
      <kwd-group>
        <kwd>eol&gt;aging in place</kwd>
        <kwd>older adults</kwd>
        <kwd>semi-structured interviews</kwd>
      </kwd-group>
    </article-meta>
  </front>
  <body>
    <sec id="sec-1">
      <title>1. Introduction</title>
      <p>
        As of 2022 there were approximately 771 million
individuals over the age of 65 globally, a number that
is expected to rise to 994 million by 2030 and 1.6 billion
by 2050. Their proportion within the global population
is also expected to rise from its current level of 10% to
12% in 2030 and 16% in 2050 [
        <xref ref-type="bibr" rid="ref1">1</xref>
        ]. This population increase
will likely overwhelm caregivers without improving the
current healthcare paradigm, as nearly 70% of older adults
depend on some form of caregiving, and the “caregiver
support ratio”, or the number of potential caregivers aged
45–64 for each person aged 80 or older, is expected to
drop from 7-to-1 in 2010 to 4-to-1 in 2030 and 3-to-1 in
2050 [
        <xref ref-type="bibr" rid="ref2 ref3">2, 3</xref>
        ].
      </p>
      <p>
        Often, the level and type of assistance older adults
require can be determined by how much assistance they
require to perform Activities of Daily Living (ADLs),
which are fundamental activities people do on a daily
basis [
        <xref ref-type="bibr" rid="ref4 ref5">4, 5</xref>
        ]. ADLs can be divided into two categories:
Basic and Instrumental. Basic ADLs, characterized by
care and movement of the body, consist of personal
hygiene and grooming, bathing/showering, toileting,
dressing, eating &amp; feeding, functional mobility, personal
device care, and sexual activity. Instrumental ADLs,
characterized by more complex daily interactions, consist
of activities such as health and home management,
driving and community mobility, child rearing, meal
preparation and cleanup, medication management, and
shopping [
        <xref ref-type="bibr" rid="ref6">6</xref>
        ]. Generally, if an individual can perform
all but one or two instrumental ADLs, they can live in
independent living communities. When individuals have
more serious physical or cognitive conditions preventing
them from performing more ADLs, the individual may
choose to live in assisted living communities or in the most
serious cases need to reside in skilled nursing facilities.
      </p>
      <p>These communities provide more regular nursing care to
aid with the dificulties in performing ADLs. Continuing
Care Retirement Communities (CCRCs) are a combination
of all three of these living options, allowing residents to
transition between the types as their ability to perform
ADLs and the corresponding need for assistance changes.</p>
      <p>
        In addition to being an indicator of the level of
assistance required, ADL performance is noticeably
afected by the onset of conditions such as lethargy,
weakness, and decreased appetite, which are clear
predictors for the presence of an acute illness [
        <xref ref-type="bibr" rid="ref7">7</xref>
        ]. Studies
have also shown that as individuals begin to require
higher levels of assistance with an increasing number
of ADLs, they have a higher likelihood of not getting
the assistance they need and are at an increased risk of
hospitalization, hospital re-admission, and have a higher
mortality rate [
        <xref ref-type="bibr" rid="ref8">8</xref>
        ].
      </p>
      <p>
        Currently, the performance of ADLs is predominantly
tracked manually and directly [
        <xref ref-type="bibr" rid="ref9">9</xref>
        ]. Caregivers, family has looked at PERS, with little work investigating the
members, or individuals themselves need to explicitly viability of monitoring and Check in Systems [27, 28, 29].
notice a diference in the person’s physical or cognitive Studies have found that while there are notable
abilities for a realization to be reached that the type benefits to tools to support health management,
or level of care required needs to change. Thus if significant barriers remain that prevent their widespread
the performance of ADLs could be monitored, it could adoption. Benefits include increasing safety, increasing
alleviate this caregiving bottleneck, facilitating aging in confidence, providing a support network, increasing
place for older adults: both alleviating the burden of social interaction, and providing enjoyment and leisure.
care on caregivers and enabling them to provide more Barriers on the other hand include concerns over
person-centered care, and reducing the overall cost of usability, cost, the need for specialized training,
healthcare [
        <xref ref-type="bibr" rid="ref10 ref11 ref12 ref13 ref14 ref15 ref16 ref17 ref18">10, 11, 12, 13, 14, 15, 16, 17, 18</xref>
        ]. security risks, potential for over-reliance, and privacy
      </p>
      <p>
        In recent years, researchers have explored the use of concerns [30, 27, 31, 32, 33, 34, 35, 28, 29, 36, 37]. In
human activity recognition as a means of automatically addition, studies have found that people prefer traditional
recognizing ADL performance. While much of the healthcare caregivers [38] and, in a similar vein, found
literature in this space has focused on recognizing the that people had concerns over the lack of human contact
ADL performance of the working-age population, several such devices might engender [31, 33, 39].
studies have looked at recognizing the activities of older In this work, we explore the viability of an ADL
adults [
        <xref ref-type="bibr" rid="ref19 ref20">19, 20, 21, 22</xref>
        ]. A few studies have taken this a monitoring system that leverages smartwatches as the
step further and tested these systems in long-term care sensing medium. We focus on older adults living in
facilities, e.g., the Center to Stream HealthCare In Place at personal care, a population that is understudied when it
the University of Missouri has done a significant amount comes to understanding the views of assistive technology
of work in this space [23, 24, 25]. among older adults. Furthermore, smartwatches are
      </p>
      <p>If actualized, human activity recognition could serve an attractive medium for providing assistance, as
as the foundation of intelligent user interfaces that allow general-purpose systems are generally better accepted
older adults to age more independently, safely, and than devices dedicated for specific aging assistance
comfortably and reduce the burden of care on caregivers. purposes [26].</p>
      <p>However, for these systems to see widespread adoption,
it is crucial to properly understand the perspective
and opinions of the older adults who would use this 3. Methodology
technology. To that end, we conducted a user study with
residents at a CCRC involving interviews before and after
a week-long simulation of participating in a remote ADL
monitoring system. In this work-in-progress, we share
the results of thematic analysis from these interviews
to understand how such technology might be received
and what design considerations are necessary to improve
chances of successful adoption.</p>
      <sec id="sec-1-1">
        <title>We conducted a study with five residents living in</title>
        <p>personal care within a CCRC in the Northeastern USA.
These resident’s demographics can be seen in Table 1.
The study consisted of a pre-interview, a week-long
period during which residents wore smartwatches on
both wrists and logged their activities in a written log,
and a post-interview. Both pre- and post-interviews were
semi-structured and were recorded and subsequently
transcribed for analysis.</p>
        <p>For this study, we used two Polar M600 smartwatches,
one worn on each wrist. We collected accelerometer and
gyroscope data from these watches; however, analysis
of the data collected from these sensors are not reported
in this work. Participants did not have to directly
interact with the smartwatches with the exception of
putting them on in the morning and taking them of at
night; i.e., the data collection happened passively without
participant interaction. A researcher visited participants
every night of the study to ensure that the watches were
charged overnight.</p>
        <sec id="sec-1-1-1">
          <title>3.1. Pre-Interviews</title>
        </sec>
      </sec>
      <sec id="sec-1-2">
        <title>The goals of the pre-interviews were to understand participants’ current experience using technology and</title>
      </sec>
    </sec>
    <sec id="sec-2">
      <title>2. Related Work</title>
      <sec id="sec-2-1">
        <title>Designing and developing technology to support older</title>
        <p>adults has long been an area of interest for researchers. In
many cases, the goal of these technologies is to support
“Aging in Place”, which entails older adults retaining
as much of their independence as possible as they
age. These tools can be broadly classified into Personal
Emergency Response Systems (PERS), Monitoring, and
Check in Systems [26]. Of these groups, PERS are the
most commonly used by older adults, generally taking
the form of a device that can be worn that has a button
users can press in the case of emergencies (e.g., falls).
Despite their prevalence, these systems are not popular
with older adults. Consequentially, much of the research
that has looked at older adults’ opinions on technology
to gauge their potential acceptance of a technology
designed to monitor their ADL performance. To that
end, we begun the interview by asking participants what
types of technology they used, what they liked and
disliked about technology, how their use of technology
has changed after moving into personal care, if and
how they use technology to manage their health, and
how they think technology could possibly support them
through the aging process. In the last portion of the
interview we asked them to imagine that a system was
put in place within their facility that recognized their
ADL performance and allowed caregivers to monitor that
performance. Then we asked them how they would feel
about the use of such a system and how it could both
benefit and disadvantage both residents and caregivers.</p>
        <sec id="sec-2-1-1">
          <title>3.2. Post-Interviews</title>
          <p>The goal of the post-interviews was to understand
how participants felt about the experience of wearing
smartwatches over the course of one week and what
impact it had, if any, on their opinions of using
technology for health management. To that end we asked
residents what they liked and disliked about wearing
the smartwatches on a daily basis, if their opinion on
technology use to monitor ADLs has changed, and what
they think older adults in general might think about such
a system.</p>
        </sec>
      </sec>
    </sec>
    <sec id="sec-3">
      <title>4. Results</title>
      <sec id="sec-3-1">
        <title>We analyzed the interview data using thematic analysis. Three computer science researchers independently coded the interviews, discussed the extracted codes, and settled on final themes. These themes can be found in Table 2.</title>
      </sec>
    </sec>
    <sec id="sec-4">
      <title>5. Pre-Interview Themes</title>
      <p>Through our interviews, we found that most participants
used some level of technology on a daily basis, typically
in the form of specific apps and functionality on
smartphones and/or tablets. Participants used technology
to communicate with their friends and family members,
read the news, shop online, and assist in maintaining
an exercise routine. Participants did not use technology
to track their own health, with the exception of P3 who
tracked a number of health metrics using a combination
of their iPhone and Apple Watch. P3 was by far the most
comfortable with technology, actively seeking out and
learning new technologies to use in their personal life.
By contrast, one participant, P1, had no ability to use
technology at all. When asked about his technology use
he explained:
“I try to limit it [my use of technology]
because my ability is not very good for
technicalities and stuf like that. They’re
not in my heart and mind. [...] Anything
that’s really new, I don’t even attempt to
do. I stay away from it.”</p>
      <p>In general, participants had no desire to learn or use
unfamiliar technologies, regardless of their reported
comfort level with using technology. Participants either
felt that they were too old to learn how to use new devices
or expressed that they were content with their daily life
and saw no need for new technology. For instance, P2
noted that a close relative bought her an expensive laptop
but that she could not get used to it. When asked why
she explained:
“If I had gotten to it maybe two years ago I
probably would have been fine. But I just
did not want to bother with; I was at a loss
[as] to how things worked. Now maybe if I
was more interested in technology, I would
have spent the time to do it. It’s too late
for me because I’ve come to technology so
late.”</p>
      <p>Participants currently use some assistive technology
within the facility, most notably an emergency pendant
that is worn around the neck. None of the participants
liked wearing the pendant, considering it ugly and noting
that it has a very limited range. P4 attributed her
unwillingness to wear the pendants to personal dislike
of the process:</p>
      <p>No issues wearing smartwatches
No change in opinion regarding technology</p>
      <p>Desire to remain independent
Acknowledged utility of remote health tracking
“I don’t, no. That’s just stubbornness. I have
it and they keep checking it [...] I believe at
least every two months or something they
make sure everything works. I don’t wanna
hang it around.”</p>
      <p>On the subject of health management, participants
were generally aware that they were being monitored
by caregivers. The most noticeable form of monitoring
to them was location during meal times, as caregivers
are required to ensure that residents are present in the
cafeteria during meals. Other participants noted that
caregivers would come around and check vital signs
regularly, ensure that residents took medications at
appropriate times, and would have a staf meeting in
the mornings presumably to discuss residents’ statuses.
Participants had mixed feelings about the potential
implementation of an ADL-monitoring system. On the
one hand, P1 noted that if it was done, he was confident
that it would be done for a good reason:
“If it’s important to have it done, then I
have it done. [...] Whenever they ask for
something this, that, and the other thing,
it’s important.”</p>
      <p>P5 echoed this idea: although initially comparing such
a system to Big Brother, she followed up by noting that
it could be beneficial for many of the older adults living
within the facility as well as their caregivers. On the
other hand, a couple of the participants were against
the idea, feeling as if it was too much of an invasion of
privacy.</p>
    </sec>
    <sec id="sec-5">
      <title>6. Post-Interview Themes</title>
      <p>Despite asking residents to wear smartwatches on
both wrists, participants had no major complaints with
wearing the watches on a daily basis. P1 went as far as
to note:
“I didn’t have any feeling one way or the
other, they became a part of me. [...] Well
the first day I had this dificulty in [using
them], but after that it was very easy, then
they were excellent really. Yep, I had no
problem with it.”</p>
      <sec id="sec-5-1">
        <title>However, participants did bring up minor issues they</title>
        <p>had, noting they would like diferent options for watches
as they were a little too big for their wrists, an ugly color,
or dificult to put on given their poor eyesight.</p>
        <p>When asked if their opinions regarding the
implementation of an ADL-monitoring system had changed,
participants largely echoed their initial viewpoints, albeit
with the added emphasis of wanting to maintain their
independence. Both participants who had felt that the
system was a step too far noted that they were okay with
using such a system but still had reservations about the
specific implementation and the privacy implications. P4
was perhaps the most apprehensive about the widespread
implementation of the idea, noting:
“I know at our eating table, there are four of
us, and we change often with other people,
but I know one in particular. I think she
was asked but she didn’t want any parts of
it because it’s, she feels technology knows
enough about her. So, I think that’s a big
hurdle for tech people.”</p>
        <p>While P3, who already wears a smartwatch daily,
expressed that he would be amenable to having his
activities tracked and was unsure of how others might
react. However, he did ofer a potential way of
implementing such a system:
“Well, I think people would raise the issue
of privacy. I don’t know, I just really don’t
know how other people would feel about
that. They may feel that the nurses are
acquiring too much information. But they
can also be motivated to keep up somewhat
of a daily routine. You know, if you know
you’re being watched you might be more
motivated to perform. [...] It might be
what diference does it make how much
activity I [do]? It’s not the nurse’s business.</p>
        <p>So I think they have to be oriented to
the fact that what you eat, what you do,
and activities [you do are] the institution’s
business. That’s why you’re here.”</p>
      </sec>
      <sec id="sec-5-2">
        <title>Despite these opinions, participants acknowledged that such a system would be useful for caregivers. P5 provided the following example use case:</title>
        <p>“So, let’s say somebody was getting weaker
and [...] all of a sudden, you’re not seeing
them going around and doing their laps.
That I could see, it would help because
they’re getting older every—and they’re
sitting more during the day. And these
people aren’t necessarily talking with their
friends on the phone or on the iPad.”</p>
      </sec>
    </sec>
    <sec id="sec-6">
      <title>7. Discussion</title>
      <p>smartwatch OSs such as Apple’s watchOS or Android’s
Wear OS would allow older adults to choose from
a number of diferent watches with a variety of
customization options. This design choice creates
opportunities for ecosystem synergy with other devices
the older adults may own and for selecting a more
comfortable watch band. To generalize, providing
freedom of choice enables the older adults to pick
a watch that matches their personal aesthetics and
preferences, providing implicit incentive to wear the
watch. Additionally, using commercially available
products allows the possibility of loved ones giving the
device itself or accessories as a gift, creating an emotional
attachment.</p>
      <p>Intelligent user interfaces that leverage human activity 7.3. Participation in ADL monitoring
recognition algorithms could be a powerful means of both should be voluntary
facilitating aging in place and reducing the burden of care;
however, this work shows that older adults will not be Given the mixed feelings residents had towards the
convinced to utilize these systems without thoughtful use of ADL monitoring, usage of such systems should
design. In this section, we discuss how these findings can be voluntary. This takeaway was even suggested
help inform the design of ADL monitoring technologies. verbatim by one of the participants. As supported
by the literature and the analysis from this work,
older adults strongly value their own independence
7.1. General-purpose systems are more and autonomy. While participating in these systems is
likely to be accepted beneficial to practicing proactive health management,
Going into the study, we expected participants to making these systems mandatory will likely lead to
dislike wearing smartwatches on both hands every resistance and noncompliance. A standout example is the
day, especially considering that the Polar M600 is current paradigm of wearing fall alert pendants: several
bulky compared to most watches in general. However, participants flatly refuse to wear them due to negative
residents’ responses were uniformly non-negative or perception of what they can imply about their current
directly positive, with several even noting that they didn’t health status. However, this distaste can be mitigated by
normally wear watches but found themselves using the making the device appealing to use, as discussed, and
smartwatch just as a watch at times during the study. involving the older adults in the design of the overall
This attitude represented as a contrast to perception of system so that they feel actively involved in their own
the fall pendants, which were a source of complaints health management. To give specific examples, older
from all participants. This outcome confirms findings by adults and/or their family members should be informed
Caldeira et al., where older adults mentioned they would what data is being collected, who would have access to
prefer smartwatches to PERS [26]. Smartwatches also that data, and how that data would be utilized. Thus,
represent a passive monitoring system, as they require no older adults could decide whether or not they are willing
technical interaction to function; this design allows older to allow caregivers to have the additional knowledge of
adults with limited to no technical literacy to successfully their daily activity. As such, the older adults can endorse
use these devices. In summary, it is recommended that wearing the device instead of being explicitly required
the device have utility outside of its health management to wear it.
purpose in order to make the device appealing even to
someone who uses little technology in their daily life.</p>
    </sec>
    <sec id="sec-7">
      <title>8. Limitations and Future Work</title>
      <sec id="sec-7-1">
        <title>7.2. Allow older adults to customize their personal system</title>
        <sec id="sec-7-1-1">
          <title>Although participants were broadly positive about wearing the watches, they did have minor issues that could be rectified by ofering more options for personalization. An application designed for popular</title>
        </sec>
        <sec id="sec-7-1-2">
          <title>This work represents an initial exploration on this topic due to a small sample size. To strengthen the contribution of these findings, this experiment will need to be repeated at other facilities with more participants.</title>
        </sec>
      </sec>
    </sec>
    <sec id="sec-8">
      <title>9. Conclusion</title>
      <p>While ADL monitoring system ofer a powerful means
of ensuring that older adults are able to age comfortably,
independently, safely, work still needs to be done to
ensure that these systems are broadly accepted by older
adults. To that end, in this work we present the results
of a thematic analysis on semi-structured interviews
conducted with older adults living in a CCRC before
and after they were asked to wear smartwatches daily for
a one-week period. We find that while older adults are
amenable to such systems, they have significant concerns
over their intrusiveness into their day-to-day lives and
the implementation of such systems. Based on these
ifndings, we describe key considerations for designers of
ADL monitoring systems.
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