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  <front>
    <journal-meta />
    <article-meta>
      <title-group>
        <article-title>Improving Data Value and its Influence on Decision Making</article-title>
      </title-group>
      <contrib-group>
        <contrib contrib-type="author">
          <string-name>Mansoor Ahmed</string-name>
          <email>mansoor.ahmed@mu.ie</email>
          <xref ref-type="aff" rid="aff0">0</xref>
          <xref ref-type="aff" rid="aff2">2</xref>
        </contrib>
        <contrib contrib-type="author">
          <string-name>Claudia Roessing</string-name>
          <email>claudia.roessing@mu.ie</email>
          <xref ref-type="aff" rid="aff2">2</xref>
        </contrib>
        <contrib contrib-type="author">
          <string-name>Priyanka Singh</string-name>
          <email>priyanka.singh0074@gmail.com</email>
          <xref ref-type="aff" rid="aff2">2</xref>
        </contrib>
        <contrib contrib-type="author">
          <string-name>Gabriel Hogan</string-name>
          <email>gabriel.hogan8@mail.dcu.ie</email>
          <xref ref-type="aff" rid="aff0">0</xref>
          <xref ref-type="aff" rid="aff1">1</xref>
        </contrib>
        <contrib contrib-type="author">
          <string-name>Markus</string-name>
          <email>mmarkus.helfert@mu.ie</email>
        </contrib>
        <aff id="aff0">
          <label>0</label>
          <institution>Adapt Centre for AI-driven Digital Content Technology</institution>
          ,
          <country country="IE">Ireland</country>
        </aff>
        <aff id="aff1">
          <label>1</label>
          <institution>Dublin City University</institution>
          ,
          <addr-line>Glasnevin, Dublin D9</addr-line>
          ,
          <country country="IE">Ireland</country>
        </aff>
        <aff id="aff2">
          <label>2</label>
          <institution>Innovation Value Institute, Maynooth University</institution>
          ,
          <addr-line>Maynooth</addr-line>
          ,
          <country country="IE">Ireland</country>
        </aff>
      </contrib-group>
      <abstract>
        <p>Data asset exploitation and management present challenges for organizations in the era of big data. Information Systems have adapted and evolved to meet many of these challenges. However, holistic governance and management of data assets for exploitation is lacking. In this paper, we show the dependencies between data lifecycle, data provenance, consent management, and data value creation, which allow identifying and applying data governance structures appropriate to the needs of individual organizations and their business contexts. We propose a framework using these four perspectives as the main building blocks for implementing holistic data governance. This framework facilitates the development of unique data workflows to meet data governance requirements for difering organizations and underpins the creation of value for organizations to exploit their digital assets.</p>
      </abstract>
      <kwd-group>
        <kwd>eol&gt;Data Governance</kwd>
        <kwd>Data Lifecycle</kwd>
        <kwd>Data Provenance</kwd>
        <kwd>Data Privacy</kwd>
        <kwd>Data Value</kwd>
        <kwd>Consent management</kwd>
      </kwd-group>
    </article-meta>
  </front>
  <body>
    <sec id="sec-1">
      <title>1. Introduction</title>
      <p>In an era of data proliferation, organizations, entities, and even IoT sensors generate vast amounts
of data. However, transforming data into a valuable asset that impacts decision-making, innovation,
and operational advantage is challenging. This immense data influx necessitates stringent measures
to ensure its quality. However, data producers often lack control over the data once it is shared or
distributed [63]. This highlights a critical gap in data oversight and management. Data governance
emerges here as a fundamental solution, defined broadly as a framework of policies, structures, and
processes to manage data assets within organizations.</p>
      <sec id="sec-1-1">
        <title>1.1. Data Governance</title>
        <p>
          Enterprises, entities, and sensors produce huge amounts of data, which is a useful asset. This creates a
need to check, ensure, and maintain data quality, including readiness, authenticity, safety, and integrity.
Commonly used control mechanisms include policies, structures, and processes called data governance
[66]. In this regard, data governance is increasingly becoming an evolving topic in modern information
systems literature as organizations necessitate an efective approach to the behavior of their data assets
[53]. Data governance is defined by the Data Management Association (DAMA) as: “the exercise
of authority, control, and shared decision-making (planning, monitoring, and enforcement) over the
management of data assets” [25]. Another definition of data governance is “Data governance specifies
a cross-functional framework for managing data as a strategic enterprise asset. In doing so, data
governance specifies decision rights and accountabilities for an organization’s decision-making about
its data. Furthermore, data governance formalizes data policies, standards, and procedures and monitors
compliance” [
          <xref ref-type="bibr" rid="ref2">2</xref>
          ]. The literature reflects the following four pillars, which are essential components of
data governance. Of the top 48 data governance publications (citation ranked by Google Scholar), 43
mention consent, data lifecycle, provenance, or value. However, within these, only four publications
reference all four pillars of governance, 3 of which were published since 2019; see Figure 1.
        </p>
      </sec>
    </sec>
    <sec id="sec-2">
      <title>2. Background</title>
      <p>The definitions outlined above have the commonality of viewing data as an asset, i.e., it can be used to
generate value for its owner. While acknowledging these perspectives, we suggest that they do not
capture the full breadth of data governance, nor do they identify the foundations that enable the core
aspect of an asset, that ability to create value. The authors above identify ‘behaviour’, ‘management’, and
‘decision making’ as some of the key attributes of data governance. We approach data governance from a
diferent perspective and contend that efective data governance relies on four foundational elements of
data as an asset: lifecycle, provenance, consent, and value. In proposing this new framework, we examine
each of these foundations, validating their inclusion from the existing literature both individually and
collectively.</p>
      <sec id="sec-2-1">
        <title>2.1. Data Lifecycle</title>
        <p>A data lifecycle is a data management tool containing phases and activities that transform data for a
specific purpose while following quality and security requirements [80]. Diferent lifecycle models are
available. General models are for use in any domain, and specialized models are for use only in certain
domains, with each model having a diferent constitution of their phases and activities [20, 82]. During
a data lifecycle, the phases and activities are determined depending on the data processing needs and
objectives to be reached, and information on how data has been modified is documented.</p>
      </sec>
      <sec id="sec-2-2">
        <title>2.2. Data Provenance</title>
        <p>Data provenance describes the origins and processing of a record. It helps in improving data quality
and to increase fairness, accountability, transparency, and explainability [95]. Data provenance is
the historical documentation of the data and its sources that traces the influences of the entities and
processes on the relevant data. A common record form will specify who has access to it, what is
processed, and the purpose of each data item. Data provenance is helpful in data analytics as it requires
a tamper-proof data structure [66]. The audit process could be simplified by using a data provenance
record to show who collected and processed the data for the dataset in question. Records of data origins
and pre-processing can aid in understanding the data’s origins and enhance transparency [95].</p>
      </sec>
      <sec id="sec-2-3">
        <title>2.3. Consent Management</title>
        <p>The expectation of privacy as a feature of Information Systems has become ubiquitous, and privacy
principles [18] are well established. The introduction of the consent provisions of the GDPR [29] is now
practiced across all aspects of the data ecosystem, including, for example, provenance [78, 92], data
lifecycle [5, 16], value [30, 52]; management [43, 69]; governance [36, 91,99]; and services [41, 55].
In GDPR, informed consent requires that organizations wishing to use data that could be used to
identify an individual (personally identifiable information or PII) must have received the active consent
of that individual to store and/or process their PII. PII has further categorizations such as sensitive, i.e.,
ifnancial information, and highly sensitive PII, i.e., medical information, requiring greater protection.
Organizations as data controllers and data processors face obligations to protect PII, which requires
implementing adequate technology, organizational, and management measures to ensure the protection
of the PII. The depiction of the data value creation can be seen in Figure 2.</p>
      </sec>
      <sec id="sec-2-4">
        <title>2.4. Data Value</title>
        <p>Traditional approaches for evaluating public data value are still in the early stages and often do not
adequately reflect its wider impact [61]. Although technocrats have developed strategic models for
creating value, end users ultimately need to experience and understand it in their daily lives [54]. The
concept of data value is associated with the exploitation of data by the users to accomplish their goals.
There is a growing requirement to value data from a data investment point of view and to understand
its impact on the economy to improve productivity and value for societal impact [23]. Generated value
can be classified as private, social, public, etc.</p>
        <p>The data from one domain can also be used in another to increase its value further. For instance, open
urban energy data used in the transformation of energy-eficient markets and investments in the real
estate sector can also be used to provide value to the general public [32]. Nevertheless, currently, the
data value is generated in silos and does not support the data exchange across multiple domains, as
shown in Fig. 2. Municipalities across Europe support open data platforms and deliver services by
exploiting it as a part of their digital transformation strategy [71]. Yet there is a lack of understanding
about how these data sets can provide value for better outcomes and benefits for their personal use [17].</p>
      </sec>
    </sec>
    <sec id="sec-3">
      <title>3. Literature Review</title>
      <p>The literature was reviewed in the context of the four proposed pillars of Data Governance: data lifecycle,
data provenance, consent management, and data value, as well as the overlapping commonalities
between them.</p>
      <sec id="sec-3-1">
        <title>3.1. Data Lifecycle</title>
        <p>One of the most valuable resources an organization has is its data. It is essential that data be processed
eficiently in order to turn it into knowledge and extract value, which organizations can then use
to enhance operations. As described in section 2.1, data lifecycles are used to assist stakeholders in
planning and organizing data management. Diferent data lifecycles are available for use in research
and practice. The variation results from the necessity to satisfy various domains’ and data processing
requirements [20, 82]. These models’ representations need to be improved in order to show relevant
and necessary elements during data management and to assist stakeholders in analyzing them [15].
Identifying these elements will assist stakeholders in gaining a comprehensive view of data processing,
enabling communication among them and assisting them in decision-making. Several studies report
the limitations of data lifecycles, stressing the need for models to show more information, which is
necessary for data processing nowadays [20, 82]. Furthermore, studies state that there is a need to show
transparency in data processing and how important it is to create value [27].</p>
      </sec>
      <sec id="sec-3-2">
        <title>3.2. Provenance</title>
        <p>The most valuable asset of an organization is data. An organization’s decision is based on this asset, and
accurate information is required for making accurate decisions. To ensure data quality, data governance
defines policies and standards [65]. For this reason, it is important to know that data comes from trusted
and reliable resources. In this regard, data provenance helps identify where the data is coming from,
who is creating the data, who is transforming the data, and whether the data has reached the desired
location correctly or not. DeStefano, Tao, and Gai [26] outline that one can improve governance by
knowing your assets, as you cannot govern well what you do not know. Having less knowledge about
data afects the quality, so keeping track of changes made in data can improve data governance in
organizations. When making critical decisions, organizations’ lack of data governance is a serious
concern. Data provenance helps enable tracking by using data life cycle &amp; tracking data stewardship
changes [85].</p>
        <p>Three stages are very important to optimize data processing and achieve quality data as input, i.e.,
collection, integration, and filtering of data as input for further analysis. The authors in [27] proposed
the smart data lifecycle to manage data. The lifecycle comprises “planning, management, collection,
integration, filtering, en-richment, analysis, visualization, access, storage, destruction, archiving, quality,
and security”. The data enrichment helps create standard repositories and enhances the dimensions
in the collected data. The quality of enrichment data depends on continuous and automatic updating
of data. Trust is also a fundamental challenge in data governance. In [50], the authors said that data
quality assessment must be conducted systematically at all stages and at various points in the life cycle.
Traceability in all phases of the data value chain is important to achieve quality. Due to this reason, the
value of data heavily relies on data provenance.</p>
      </sec>
      <sec id="sec-3-3">
        <title>3.3. Consent</title>
        <p>Privacy and consent management are acknowledged as core features of modern data ecosystems [6].
Consent is a primary concern afecting trust, data quality, transparency, and value [36]. Big data
ecosystems such as health informatics [39, 84], big data-intensive research [45, 93], and data sharing
between ecosystems [94] have demonstrated sensitivity to consent management. These and other
examples [38] illustrate the necessity for business ecosystems and models to transform to consider the
management of PII and consent. Privacy considerations are now designer requirements for Information
Systems, particularly where data location may be ambiguous, i.e., cloud-based [37].
Organizations difer in their industry, sector, and types with diferent value propositions and ‘business’
focus variations. For example, there are diferent data governance requirements for commercial safety
entities and those of a government department whose remit is public access to documents [48], while
health organizations may need to weigh the balance between patient privacy and the public good [77].
However, regardless of the diferent organizational focus, each organization type that is operating under
GDPR is required as a data controller or data processor to have traceability of all consents regarding
the PII that they control or process so that they can provide assurance that they are compliant with
GDPR. The right to consent withdrawal and particularly the right to be forgotten (RTBF) in GDPR have
generated difering opinions on their impact on disruptive big data business opportunities. Regardless
of discipline, sector, type, or size, each organization faces the challenge of the complexity of consent
management within the overall context of information and data governance [72].</p>
      </sec>
      <sec id="sec-3-4">
        <title>3.4. Data Value</title>
        <p>Data governance is a crucial aspect of contemporary data management, significantly impacting
organizations aiming to leverage their data resources [68] fully. Nonetheless, the understanding of value in
the context of governing data seems to be a wicked and persistent challenge [11]. As a part of open
data initiatives, many data sets are available for the general public to use, while the resulting societal
value from such initiatives is not as prevalent as was predicted [49]. The technological challenge is
integrating real-time data from diferent sources such as mobile apps, web applications, social networks,
etc. To address this challenge, Gagliardi et al. [34] developed an ICT-based tool, ‘UrbanSense’, to assist
city authorities in creating new and open services for citizens by integrating their feedback in real time.
Nonetheless, the tool will not be useful in cases where data is partially available or unavailable at all.
Another challenge is the lack of accessibility and overview of relevant available data and the associated
actors [71].</p>
        <p>Moreover, Meijer and Potjer [59] found that the complex interactions between diferent stakeholders
contributing to building collective data and influencing its impact are not studied enough in the
literature. Their study confirmed that citizen-generated open data could provide guidance for collective
governance aimed at generating public value, though this study does not provide any information about
the relevance, impact, and distribution of such open data initiatives. Aydin [8] provided a
comparative perspective on big data technologies using a big data value chain model but did not include the
application in a specific context. Based on the above discussion, our study found that there is a need to
understand how value is generated in the context of data governance and the critical roles the diferent
pillars (i.e., provenance, consent management, data life cycle) play in value generation. This has been
neglected in the majority of the existing research.</p>
      </sec>
    </sec>
    <sec id="sec-4">
      <title>4. Relationship Among Four Pillars</title>
      <p>The interconnected relationships between data value, provenance, consent, and the data lifecycle form
the foundation for efective data governance and value optimization. Each pillar relationship, data value
and provenance, consent and data value, consent and provenance, consent and data lifecycle, and data
is collected from various sources and sensors, which is central for creating value-added services for the
end users [71]. They create a comprehensive framework where data quality, privacy, and traceability
are continuously reinforced. By understanding and integrating these relationships, organizations can
navigate the complexities of data management, maximize its utility, and uphold compliance and ethical
standards throughout the data lifecycle.</p>
      <sec id="sec-4-1">
        <title>4.1. Relationship between data value and provenance</title>
        <p>
          Data is collected from various sources and sensors, which is central to creating value-added services
for the end users [71]. The key to creating innovative services is the reusing of data to create value
globally [
          <xref ref-type="bibr" rid="ref1">1</xref>
          ]. Data provenance can assist in re-using data to optimize maximum value, but it is important
to ensure that it is of good quality [7] and to know that data comes from trusted and reliable resources.
Data provenance describes a record’s origins and processing and helps improve data quality [26]. In this
regard, data provenance helps identify where the data is coming from, who is creating the data, who is
transforming the data, and whether the data has reached the desired location correctly or not. Data
knowledge is related to data quality, and tracking changes made to data can improve data governance
in an organization. Data quality assessment must be conducted systematically at all stages and various
life cycle points [50]. Additionally, traceability in all phases of the data value chain is important to avoid
poor quality, which can impact data value. Therefore, there is a need to ensure that data provenance
techniques are applied while processing data so that correct decisions and appropriate actions are taken
to obtain maximum value out of data.
        </p>
      </sec>
      <sec id="sec-4-2">
        <title>4.2. Consent and Data Value</title>
        <p>
          Companies collect enormous amounts of data to profile individuals and extract predictive information,
resulting in high economic, political, social, and strategic value [72]. Personal data is an asset due to its
potential for generating private and commercial value by providing services using personal information
[86], which often reduces privacy and social welfare [
          <xref ref-type="bibr" rid="ref3">3</xref>
          ]. Under GDPR, personal data must be kept
independently and be subject to organizational and technical measures to ensure non-attribution [88].
Data value can be perceived as a function of utility [9], and the distinction between data as capital,
data as labor, or data as property (intellectual or otherwise) illustrates the multifaceted nature and
relation to value [79]. Property rights in law and the principle of controlling access to and use of the
property are also among the foundations for privacy in GDPR. Data value is also contextual to the
stakeholder as mentioned above, i.e., private value, social value, public value, etc., and there is potential
for value reciprocation [52], though this can be an issue if perceived as transactional under GDPR.
The calculation of data value is conditional, i.e., a logical prerequisite for data value is the existence
and availability of data [67]. Data value chains are also a well-established value perspective in the
literature, and numerous aspects are widely documented [30, 87]. Each of the respective proposing
authors acknowledges the efect and impact of consent on their value perspectives and the essential
role consent plays in modulating each value proposition.
        </p>
      </sec>
      <sec id="sec-4-3">
        <title>4.3. Consent and Provenance</title>
        <p>
          Consent management and traceability are facilitated by data provenance. Consents are specific instances
of data to be managed for a specific context. The accurate and eficient provenance of consent is equally
as important for the assurance, integrity, and quality of the data as the provenance of the data that the
consents are linked to. The use of data provenance is a widely accepted approach to the management of
consent, and numerous approaches to this problem have been proposed [
          <xref ref-type="bibr" rid="ref4">4</xref>
          ] but tend to be siloed by
technology [76] and programmatic [48] perspectives. For example, proposed technology approaches
incorporating provenance and consent include RDF technology [81]; design patterns [92]; flow auditing
in IoT [69]; data privacy traceability [10, 24]; blockchain [35, 57,98]; and smart contracts, [62, 90].
Each of these underlines how the overlapping, though distinctly independent, provenance-consent
relationship may be managed as data governance requirements for privacy applied as the eficient
provenance of PII consents.
        </p>
      </sec>
      <sec id="sec-4-4">
        <title>4.4. Consent and Data Lifecylce</title>
        <p>This diference in approach (technology vs. programmatic) is also reflected in the relationship between
consent and the data lifecycle. Diferent models and technical solutions are proposed that afirm the
close relationship between consent management and the diferent contexts of the data lifecycle. Consent
management is particularly relevant in the data collection, storage (including archiving), security, data
processing, and data destruction phases of the data lifecycle. Various approaches are proposed in the
literature to provide methods and models confirming the part that consent management now plays as an
essential component in the data lifecycle. These range from an abstract personal data lifecycle model [5],
a semantic reference architecture for privacy and consent in the data lifecycle [31], relationship mapping
of privacy regulation, properties, and lifecycle phases [56], Data Lifecycle phase implementation in
blockchain for GDPR compliance, [33], a research data lifecycle for managing and sharing research
data with provenance, ethics and informed consent requirements, [22], extended data-lifecycle Data
Flow Diagrams to elicit and mitigate privacy threats in IoT [16].</p>
      </sec>
      <sec id="sec-4-5">
        <title>4.5. Provenance and Data Lifecycle</title>
        <p>Data lifecycle and data provenance are interconnected, as data provenance can be seen as part of a data
lifecycle. Data provenance information is gathered, managed, and updated at all data lifecycle phases
[96]. Data provenance is enhanced as data progresses through a data lifecycle by adding details about
transformations, processing steps, and usage. In all phases of a data lifecycle, data provenance helps to
increase transparency and understanding of the data [50]. Integrating these two pillars improves data
traceability and accountability, making identifying error sources easier, understanding data lineage,
and making reliable data available to stakeholders for decision-making [28].</p>
      </sec>
    </sec>
    <sec id="sec-5">
      <title>5. Existing Frameworks</title>
      <p>
        A number of individual frameworks exist for each of the pillars. Table 1 depicts some of the work in the
literature about data governance. These are outlined below for each of the individual pillars. However,
they exist in isolation, none of which encompass all four identified pillars or the relationships between
them in an efective data governance framework.
5.1. Value
There is a lack of studies that provide guidance to understand how value is created for society, and it
requires solutions that can determine how data is produced, published, and promoted. To solve this
issue, Abella et al. [
        <xref ref-type="bibr" rid="ref1">1</xref>
        ] presented a model for creating value via reusing data that can assist in creating
social and economic value for society using data-driven innovation. However, the model has not been
evaluated with real data, and the number of considered impacted indicators within the model is limited.
Similarly, Pedersen [70] proposes a framework for helping public sector organizations increase value
creation and solve society’s complex problems using open innovation approaches. Nevertheless, the
research findings from this study do not represent the problem in a wider context, and the resulting
outcome of the investigated open innovation projects is unknown. Another challenge is the absence of
access to an overview of relevant available data and associated actors [71]. To deal with this challenge,
Petersen et al. [71] provided an Enterprise Architecture Framework to support existing data spaces
for creating value-added services for citizens by composing all accessible data and related information
about it. Furthermore, this study defines various data perspectives within the proposed framework,
such as interoperability, data security and risk assessment, and data governance. However, this study
does not provide any details about how this can be achieved in a real-time application.
      </p>
      <p>Framework</p>
      <p>Objective</p>
      <p>Limitations
Master data Reference model
lifecycle manage- to analyze master
ment data lifecycle</p>
      <p>The model was not
evaluated using real-life settings.</p>
      <p>The model doesn’t mention
data privacy or data
security.</p>
      <p>The assessment metric is not
accurate
Value creation as- To provide a
sessment guideline to show
what aspects to
consider when
evaluating an
open data
initiative in value
creation.</p>
      <p>Data value chain To provide a It does not consider data
seframework with curity.
key factors to
create value in
informationintensive services
DaLif To create a The framework needs a
pracdata lifecycle tical validation
for data-driven
governments
64
7
82
51</p>
      <sec id="sec-5-1">
        <title>5.2. Lifecycle</title>
        <p>Various frameworks are available in the literature, some of which are listed in Table 1. Lim et al.
[51] created a framework for data-based value creation in information-intensive services. The study
identified nine essential factors which are considered important for creating data value. The factors
are data source, data collection, data analysis, information on the data source, information delivery,
customer (information user), value in information use, and provider network. Intending to transform
data into knowledge and subsequently create value, Shah et al. [82] created a data lifecycle focused
on data-driven governments. The framework has 14 phases and was created from analyzing 76 data
lifecycle models. The analysis also allowed authors to define which phases are mandatory or optional
in a data life cycle.</p>
        <p>In [64], a holistic framework is provided for master data lifecycle management, which contains
strategic, tactical, and operational aspects to assist organizations in analyzing a master data lifecycle
and identifying areas for improvement. The model is divided into four competencies: data portfolio,
data and system design, data supply, and data support. Attard et al. [7] focus on creating data value
through open government data. They provide the definition of a data value network, which shows a
set of linked activities, data discovery, data curation, data interpretation, data distribution, and data
exploitation. The work concludes by adding new aspects to the value creation assessment framework,
which guides which aspects should be considered when evaluating an open data initiative in value
creation.</p>
      </sec>
      <sec id="sec-5-2">
        <title>5.3. Consent</title>
        <p>There are many consent management frameworks (CMF) available in the literature. Bonnici and Coles
Kemp [14] propose a principle-based CMF of consent (ethics) theory (policy) norms norm (software)
manifestation where the authors argue that both organizational and software processes are essential
to a consent management framework. Tokas and Owe [89] propose a modeling language framework
to facilitate data subject management of privacy settings, and various blockchain-based frameworks
are proposed [75]. The Interactive Advertising Bureau [40] introduced a Transparency &amp; Consent
Framework, including policies and technical specifications with supporting operational and compliance
resources for commercial operators. More recently, dynamic consent management frameworks have
been proposed using both blockchain [44, 46, 47, 74, 97] and non-blockchain approaches [42, 83].
However, these proposed frameworks do not consider the relationships between these CMFs and other
IS paradigms. In providing a singular focus on consent management, the interactions and interfaces
within IS and the context of CMFs within data governance are unacknowledged. Without a holistic
perspective, the proposed frameworks sit uneasily in data governance and IS. The type of data statement,
including lifecycle, province, consent, and value, can be seen in Figure 3.</p>
      </sec>
      <sec id="sec-5-3">
        <title>5.4. Case Study</title>
        <p>To provide some perspective for the real-world context of our framework, we outline the following use
case. This illustrates:
• The complex nature of the data as an asset, with value meaning diferent things in diferent
contexts and scenarios.
• The diferent phases of the data lifecycle.
• The opportunities for multiple provenance instances to occur.</p>
        <p>• The multiple touch-points for consent in the data journey
Jean is ill and is going for the first time to a medical clinic for treatment, her previous medical records
are not available. Jean provides her consent and personally identifiable information (PII) to the clinic
so that they can provide treatment to her. She also provides consent to the medical doctors to collect,
analyze, and store her sensitive personally identifiable information (SPII) and to share it with other
facilities for diagnosis. The clinic collects and stores Jeans PII (name, address, age, date of birth, height,
weight, place of birth, family medical history, and any medical conditions), SPII, and consent in a
mixture of electronic formats such as database, spreadsheet, and emails, in addition to various physical
formats, including paper, dictation tapes, and blood samples. These are initial records establishing the
origin of the information (from Jean) and the date of the record, along with the obligations on the clinic
as a data controller. The clinic (data controller) sends her blood samples to a laboratory (data processor)
for processing and analysis. Jean has made an MRI with a local radiology facility. She provides her
consent and personally identifiable information (PII) to the facility (the data controller) for collecting and
analyzing her sensitive medical information. The laboratory (data processor) and the radiology facility
send the analysis results to her clinic (data controller) electronically, and a physical copy is provided to
Jean. Once this is completed, both facilities dispose of the information. After analysis of her results, she
is referred to a hospital for treatment, where her medical history, test measurements, analysis, results,
diagnosis, Jean’s physician’s observations, decisions, and recommendations are forwarded by the clinic
(the controller) to the hospital (the processor) and stored there. Jean consents to the treatment and is
admitted to the hospital.</p>
        <p>The details of her inpatient tests and her treatment are kept on file at the hospital and shared back with
her physicians at the clinic. The clinic provides follow-on care for Jean, and she consents to participate
in a clinical trial, allowing her data to be used by a research facility to discover new treatments. Her
data journey mirrors each of the above steps of Jean’s patient journey. When Jean provides her PII
and SPII, she provides consent to allow for her data to be managed by each organization as a data
controller or data processor. Jean can withdraw or revoke her consent to use her data at all times.
Each organization she interacts with follows its own data lifecycle management process, applying
it as appropriate to her data, ensuring that Jeans’ data is managed appropriately from generation to
disposition. In each case, the provenance of her data and the provenance of her consent is established
from its origin (Jean) through each activity, operation, use, or transaction on her data and consent,
whether collected, received, transferred, or disposed of. Ensuring that Jeans’ data is genuine, accurate,
verifiable, and trustable as it is used in and applied to her treatment. It is also important to ensure that
it is traceable, can be located when required, and verifiably disposed of when Jean requests or when
she withdraws consent to the continued use of her data. The combination of consent management,
data lifecycle management, and data provenance management enables the creation of value from the
data journey, which can be multi-faceted - private (i.e., financial to the organization), social (to citizens
with similar challenges), public value (based in knowledge and understanding), or personal to Jean (her
health).</p>
      </sec>
    </sec>
    <sec id="sec-6">
      <title>6. Proposed Framework</title>
      <p>In the context of Jean’s healthcare journey, the four pillars, data value, provenance, consent, and data
lifecycle, collectively address key gaps and challenges in data governance, creating a reliable,
valuedriven framework for handling sensitive information. Among these pillars, data value and provenance
ensure that Jean’s information is traceable, trustworthy, and capable of supporting quality treatment
decisions across various medical facilities. Consent and data value illustrate that Jean’s permissions
provide ethical and legal compliance and enhance her data’s value at each step of her care. The interplay
between pillars, consent, and provenance provides an additional layer of assurance that Jean’s data,
along with her consent, is accurately recorded and traceable across all medical and diagnostic stages.
Moreover, linking consent to each phase of the data lifecycle, i.e., from collection to secure disposal,
creates a clear, structured path for handling Jean’s data. Thus empowering her with better control
of data and aligning each step with security and privacy standards. These pillars minimize potential
loopholes, ensuring Jean’s data is ethically managed, secure, and optimized for healthcare outcomes
while providing a strong foundation for generating public, social, and private value. The proposed data
governance framework is shown in Figure 4.</p>
      <p>The implementations of the aforementioned pillars are solution-agnostic (not tied to any specific
platform, tool, or specific technology). The choice is left to the practitioners to adopt and apply what
best fits their needs. However, we believe that to provide a cohesive data governance framework, each
of the four pillars, i.e., data lifecycle, data provenance, consent management, and data value, must be in
place. We also believe that excluding any of these pillars limits the efectiveness of a data governance
strategy.</p>
    </sec>
    <sec id="sec-7">
      <title>Conclusion</title>
      <p>This article highlights the dependencies and relationships between data lifecycle, data provenance,
permission management, and data value creation, enabling organizations to design and implement
appropriate data governance structures for their needs. To help the creation of data workflows that
meet data governance requirements, the authors propose a framework that uses these four pillars as
the main building blocks for establishing holistic data governance. Each approach and proposition
outlined above addresses data governance in the context of provenance and consent as enablers in the
data lifecycle and the subsequent generation of value from the eficient use of quality data assets. Data
is only available through the collection, acquisition, or sharing mechanisms, each of which requires
consent in specific regulatory environments such as GDPR in Europe, and data assets can only be
exploited if they’re known and available from technical, legal, and business perspectives.
The tight coupling between the core provenance, consent management, lifecycle, and data value
is demonstrated in the literature. These four perspectives together form the main building blocks
for implementing holistic data governance, facilitating the development of unique data workflows
to meet data governance requirements for difering organizations and their business contexts, and
underpinning value creation for organizations exploiting their digital assets.</p>
      <p>Future work will focus on advanced data provenance tracking, and we will look deep into adaptive
consent management mechanisms. Moreover, we will further explore developing governance models
that maximize data value and align well with organizational-specific needs.</p>
      <p>Acknowledgments: This publication has emanated from the research conducted with the financial
support of Science Foundation Ireland under Grant No. 23/ /12107.
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