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  <front>
    <journal-meta />
    <article-meta>
      <title-group>
        <article-title>Towards Cultivating Decentralised Data Privacy, Interoperability and Trust with Semantic PETs and Visualisations⋆</article-title>
      </title-group>
      <contrib-group>
        <contrib contrib-type="author">
          <string-name>Anelia Kurteva</string-name>
          <xref ref-type="aff" rid="aff0">0</xref>
        </contrib>
        <contrib contrib-type="author">
          <string-name>John Domingue</string-name>
          <xref ref-type="aff" rid="aff1">1</xref>
        </contrib>
        <aff id="aff0">
          <label>0</label>
          <institution>Delft University of Technology</institution>
          ,
          <country country="NL">The Netherlands</country>
        </aff>
        <aff id="aff1">
          <label>1</label>
          <institution>Knowledge Media Institute (KMi), The Open University</institution>
          ,
          <addr-line>The</addr-line>
          <country country="UK">UK</country>
        </aff>
      </contrib-group>
      <abstract>
        <p>Recent artificial intelligence (AI) advancements in the fields of generative AI and hyper-automation in the Internet of Things (IoT) have turned data into a valuable highly sought-after asset and an economical resource for the ever-growing service digitization. Fields such as smart cities, e-commerce and finance now often integrate AI to improve and optimise online services, which requires large volumes of diverse high-quality data. Most of the data that is generated, related and used by humans for AI in any of these domains can be categorised as personal. The access to it, its processing and sharing for diferent purposes between diferent software agents, humans and organisations, if not governed and legally compliant, can jeopardise individuals' privacy and sovereignty both online and ofline. Through the years, several eminent data misuse cases have shown that the current centralised digital data ecosystem is easily exploitable and that there is a lack of transparency and accountability along the data supply chain. Individuals have long ago lost control over their data due to vendor lock-ins and their privacy is often violated. The growing number of fines issued to numerous organisations in response to violating the General Data Protection Regulation (GDPR) by misusing individual's personal data, further confirm this. A new paradigm shift towards decentralisation of the Web has emerged as a solution. However, implementing data and privacy governance in a decentralised setting poses new technical and organisational challenges that are currently being investigated and a standard solution is yet to be established. Further, there is a lack of tools aimed at assisting and guiding individuals in managing their decentralised data. In this paper, we propose the development of a more human-centered approach for building trusted self-sovereign decentralised spaces for personal data governance based on combining semantics with privacy enhancing technologies (PETs) and the utilisation of graphical visualisations. We present the main building blocks of the proposed approach with the main goal to foster further discussion and collaboration between the Semantic Web, Privacy, Decentralisation, Human-Computer Interaction and Legal communities.</p>
      </abstract>
      <kwd-group>
        <kwd>eol&gt;Decentralisation</kwd>
        <kwd>Privacy Enhancing Technologies</kwd>
        <kwd>Ontologies</kwd>
        <kwd>Knowledge Graphs</kwd>
        <kwd>Data Visualisation</kwd>
        <kwd>Legal Compliance</kwd>
        <kwd>Trust</kwd>
      </kwd-group>
    </article-meta>
  </front>
  <body>
    <sec id="sec-1">
      <title>1. Introduction</title>
      <p>
        The data economy is expected to rise to staggering 827 billion euros in value by 2025 [
        <xref ref-type="bibr" rid="ref1">1</xref>
        ]. According to
the European Commission, "Data is the lifeblood of the economy and a driver of innovation"1. However,
the access, processing and sharing of the data for diferent purposes between diferent software agents,
humans and organisations if not governed and legally compliant, can jeopardise individuals’ privacy
and sovereignty both online and ofline. Prominent examples of data misuse cases are National Security
Agency’s mass intelligence-gathering surveillance programs [
        <xref ref-type="bibr" rid="ref2">2</xref>
        ], Cambridge Analytica’s data harvest
[
        <xref ref-type="bibr" rid="ref3">3</xref>
        ] and Clearview’s2 Artificial Intelligence (AI) social media image collection 3. Over the past few
years, the risks to one’s privacy and personal data sovereignty, stemming from vendor lock-ins due to
the current quasi-monopolistic data economy [
        <xref ref-type="bibr" rid="ref4">4</xref>
        ], have motivated a new paradigm shift towards the
decentralisation of data on the Web. Endorsed by the creator of the Web himself, decentralisation aims
to make individuals “once again be the masters of their own data” 4 by separating data from services [
        <xref ref-type="bibr" rid="ref5">5</xref>
        ].
Further discussion on decentralisation is provided in [
        <xref ref-type="bibr" rid="ref6">6</xref>
        ]. The need for individuals’ data empowerment
has also led to the enforcement of laws such as the EU’s GDPR [
        <xref ref-type="bibr" rid="ref7">7</xref>
        ]. However, the research thus far
has focused primarily on advancing the technology itself and has overlooked the human-centered
side. Non-experts, whom decentralisation aims to empower, are in need of easy to understand and
use, informative user interfaces (UIs) that simplify and minimise the burden of decentralised data
governance [
        <xref ref-type="bibr" rid="ref8">8</xref>
        ][
        <xref ref-type="bibr" rid="ref9">9</xref>
        ]. Currently, only one such UI [
        <xref ref-type="bibr" rid="ref9">9</xref>
        ] has been designed and published as an open-source.
Guidelines for implementing GDPR-compliant decentralised data governance, which individuals can
follow, are yet to be defined as well [
        <xref ref-type="bibr" rid="ref8">8</xref>
        ][10]. Having investigated existing related work on privacy,
semantics, human comprehension and data governance in (but not limited to) decentralised settings (e.g
[10][
        <xref ref-type="bibr" rid="ref8">8</xref>
        ][
        <xref ref-type="bibr" rid="ref9">9</xref>
        ][11][12][13]) we have identified the following five challenges that we believe limit its further
adoption. Challenge 1 (C1)-supporting decentralised data interoperability between diferent agents
(humans, machines), stems from the complexity of data and process management across decentralised
agents and the need for unified vocabulary to catalogue data sharing which is used as a standard
(further elaborated in [10]). This introduces challenge 2 (C2) - establishing responsibility and fostering
accountability across decentralised agents. An agent’s identity and role(s) should be clearly defined and
verified as each agent can have diferent roles in diferent use cases thus various responsibilities. The lack
of data interoperability and unclear responsibilities afect the transparency of a system and end-users’
trust in it. Legally compliant data sharing and processing based on one’s informed consent is a necessity
and a building block of trust. However, it is still not clear how to best support individuals in making
sense of decentralised data sharing and the consent for it (viewed as C3). This topic is further discussed
by the authors in [10][
        <xref ref-type="bibr" rid="ref8">8</xref>
        ][
        <xref ref-type="bibr" rid="ref9">9</xref>
        ]. The above mentioned challenges further relate to privacy-preservation
(another building block of trust). How can we support decentralised data interoperability and process
transparency (e.g. clearly establish responsibilities, verify agents’ identities) while preserving privacy?
Following this, we define C4 - ensuing sensitive decentralised personal data is protected and only shared
with verified agents in a privacy-preserving manner. Last but not least, based on discussions on the
performance of decentralised web technology (e.g. [14][15][16]) we define performance as challenge C5.
To address these challenges and to help cultivate a trusted data economy, we propose the DataPrInTs
approach - an interdisciplinary human-centered approach to decentralised data governance based on the
combination of Privacy Enhancing Technologies (PETs)(i.e. tools or technologies aimed at enhancing
privacy [17]) and semantics (i.e. ontologies and knowledge graphs) and added data visualisations such
as user interface(s) (UI) for decentralised data flows and consent management. In this context, we view
trust as a “firm belief in the reliability, truth, or ability of someone or something" 5[13]. The main goals of
this approach are to:
• Establish trust in data spaces through visualisations that raise transparency of decentralised data
sharing flows between data spaces and all actors in them
• Assist individuals in making sense of decentralised data sharing by using visualisations as a tool
for privacy explanations
• Explore incentives for decentralised data sharing
• Define machine-readable decentralised data sharing policies, licenses and contracts that support
legal compliance
• Foster data exchange between data spaces while preserving individuals’ privacy
Section 2 outlines the proposed approach and its building blocks. A proposal for next steps towards
the approach’s implementation for two use cases (i.e. AI for sustainability and education) are presented
in Section 3. Conclusions can found in Section 4.
4https://www.inrupt.com/blog/flanders-solid
5https://www.merriam-webster.com/dictionary/trust
      </p>
    </sec>
    <sec id="sec-2">
      <title>2. Towards an Approach for Decentralised Personal Data Privacy,</title>
    </sec>
    <sec id="sec-3">
      <title>Interoperability and Trust</title>
      <p>
        Currently in centralised systems service providers are responsible for storing and processing individuals’
data in a legally compliant way. In a decentralised system, individuals are given control and ownership
of their data, which can be a burden [10][
        <xref ref-type="bibr" rid="ref8">8</xref>
        ]. While in favour of sovereignty, this promotes an unrealistic
expectation that individuals are well aware of the applicable laws, their rights and have a level of
privacy knowledge that can help them make informed decisions about their personal data management
in decentralised settings. Building a trusted and privacy-preserving decentralised ecosystem requires
an interdisciplinary approach that combines knowledge from the Semantic Web, Legal, Privacy,
Humancomputer Interaction and even AI domains. The following sections present our proposal for such
approach and its main building blocks.
      </p>
      <sec id="sec-3-1">
        <title>2.1. DataPrInTs Approach Proposition</title>
        <p>Following the presented in [10] and in previous sections challenges to decentralised data governance,
privacy and trust, we propose the following interdisciplinary human-centered approach (see Fig. 1) for
preserving decentralised personal data privacy and establishing data interoperability and individuals’
trust.</p>
        <p>Semantic Web technologies, including ontologies and knowledge graph can be used to support the
majority of findable, accessible, interoperable, reusable (FAIR) [ 18] data principles (e.g. see box 2 in
[18] for principles "F2. Data are described with rich metadata", "A1. (Meta)data are retrievable by their
identifier using a standardised communications protocol" ). Ontologies can define a semantically rich
schema of personal data spaces, the data they safeguard and access and usage policies related to them.
Regarding privacy preservation, the combination of PETS such as diferential privacy [ 19], multi-party
computation [20], federated learning [21] with semantic-based data access and usage mechanisms can
facilitate a more-context aware data processing and privacy-preservation. This can be extremely useful
for making AI privacy-aware in sensitive cases such as personal medical treatment or health insurance
policy recommendation.</p>
        <p>Data visualisations are a key tool to raise individuals’ awareness and ease their comprehension
of decentralised data flows thus help cultivate more trust. Visualisations (e.g. UIs) can also be used
as a communication channel for privacy explanations to individuals. Taking a step further, to better
understand individual’s motivation to participate in a decentralised data ecosystem, smart contracts and
licences for data sharing that incorporate incentives can be explored as well. Following the proposed
approach, a proof-of-concept prototype based on privacy-by design principles (e.g. user-centric, data
minimisation, system and process transparency) in the form of a software tool with an interface that
guides individuals through their personal decentralised data ecosystem will be implemented. The
tool’s evaluation (both qualitative and quantitative) in terms of its usability, ability to ease individual’s
comprehension of decentralisation and increase trust in data spaces will help gather valuable insights
on individuals’ perspectives of decentralisation and privacy. Further, the tool can be evaluated in terms
of its ability to support decentralised data audits and legal compliance.</p>
      </sec>
      <sec id="sec-3-2">
        <title>2.2. Approach Building Blocks</title>
        <p>The following sections present in more detail the main legal, technical and human-focused building
blocks of the proposed approach. In addition, for each building block, we propose a concrete utilisation
and propose several (research) questions that come into light for further discussion on the topic(s).</p>
        <sec id="sec-3-2-1">
          <title>2.2.1. Legislation</title>
          <p>
            Several legislations aimed at fostering stronger data protection that empowers individuals, for example,
the GDPR [
            <xref ref-type="bibr" rid="ref7">7</xref>
            ], the Data Act [22], the Data Markets Act [23] and the European Data Governance Act
[24] have already been or are yet to be enforced. Preserving an individual’s privacy has become a key
objective for ensuring legal compliance. However, with the current developments now rising to the
fore in the digital economy, for example, service digitization in the IoT sector and AI advancements, a
discrepancy between the law and its technological application can be observed. An example of this
is the application of GDPR’s principles for data protection to decentralisation, which has a diferent
approach to data sharing as it puts the responsibility in the hands of the individuals [10]. More recent
legislations such as the AI Act [25] needs to be considered as well when developing AI and utilising
PETs such as federated learning (i.e machine learning over remote data sources) [26].
          </p>
          <p>Having this in mind, we believe that the problem needs to be investigated through both technology
and legal perspectives. A set of requirements (aligned with the law(s)) that can be used as guidelines
for GDPR-compliant trusted personal data governance in decentralised settings can be derived and
documented in a machine-interoperable format to ease automation (e.g. of compliance and auditing)
when needed. The added benefits of semantics for automated GDPR compliance verification have
already been showcased by the authors in their previous work in [27][28]. Last but not least, clashes
and overlaps between legislations regarding data protection and its use for AI need further investigation
which might need to be use case specific.</p>
        </sec>
        <sec id="sec-3-2-2">
          <title>2.2.2. Decentralisation</title>
          <p>
            The shift to decentralisation has slowly but successfully started to take place6,7. Decentralised identifiers
(DIDs)8, Distributed Ledger Technology (DLT)9 and personal data stores such as Solid [29], have
emerged as decentralised technologies that enhance privacy, enable security and process transparency
and help individuals regain ownership of their data. However, decentralisation has also shifted the
roles, responsibilities and obligations of actors involved in data sharing. This afects how GDPR’s legal
basis, namely informed consent (Art. 7) and individual’s rights ("right to be forgotten" (Art. 17(2))) are
communicated to individuals and are enforced. The technology developments have focused mainly on
6https://www.cnbc.com/2020/11/09/tim-berners-lee-attracts-nhs-bbc-natwest-to-inrupts-solid-platform.html
7https://www.inrupt.com/blog/flanders-solid
8https://www.w3.org/TR/did-core/
9https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/492972/
gs-16-1-distributed-ledger-technology.pdf
the back-end leaving behind the front-end interfaces that are the mediums end-users need to interact
with their decentralised data. “The development of an intuitive user experience is of the highest importance
to SolidLab”10. Recent UI research [
            <xref ref-type="bibr" rid="ref9">9</xref>
            ] has shown promising results, has further highlighted the need for
visual explanations of decentralised data sharing and the consent associated with it and has uncovered
a new set of challenges related to individual’s comprehension of decentralisation. One of our main
goals is to define requirements (both functional and non-functional) that help design and implement
an easily comprehensible UI that utilises dynamic data visualisations to assist individuals in making
sense of their decentralised data sharing. These visualisations can also vary depending on the selected
decentralised technology, context and individuals. However, an important thing to further investigate
and discuss concerning this approach is the sustainability of the visualisations themselves.
          </p>
        </sec>
        <sec id="sec-3-2-3">
          <title>2.2.3. Privacy Enhancing Technologies (PETs)</title>
          <p>PETs not only enhance one’s privacy by restricting and minimising data collection, the access to it and its
usage and availability, but also by providing a level of security during data sharing through encryption
[30]. According to Information Commissioner’s Ofice (ICO) 11, PETs play a vital role in establishing
efective data governance [ 31] and recommend their wider adoption in industry [32]. Most PETs operate
on the principle of data minimisation, which while supporting privacy can limit the accuracy and
explainability levels of automated AI-based decision making. There is a conflict between maintaining
data privacy and its accessibility and interoperability that needs to be resolved to help achieve the future
goals of the data economy [22][23][24]. The application of PETs in decentralised systems is also gaining
traction. Several articles such as [33] explore the combination of PETs and blockchain [34]. However,
due to its immutable nature, blockchain poses a risk to individuals’ privacy and restricts GDPR’s right
to be forgotten [35][36][37]. The maturity level of diferent PETs (e.g. federated learning, multi-party
computation, diferential privacy etc.) and their suitability for utilisation in diferent decentralised
data sharing contexts needs to be investigated. Guidelines in a machine-interoperable format can be
provided and the process of a suitable PET recommendation can be automated with machine learning
(trained on past PET success and failures and considering use case context). Within our approach, we
plan to utilise ontologies and knowledge graphs to develop more context-aware PETs that support both
data interoperability and GDPR’s principles of transparency, traceability and data protection by design
(Art. (25)). A challenge here is to balance data’s privacy and security and its FAIRness.</p>
        </sec>
        <sec id="sec-3-2-4">
          <title>2.2.4. Semantic Web Technologies</title>
          <p>Ontologies and knowledge graphs stand out as two widely utilised semantic web technologies that
support data interoperability, traceability and transparency [38]. Since the acceptance of the GDPR,
these technologies have become the "go-to" solution for building structured, standardised, human- and
machine-readable representations of and reasoning over legal knowledge [39][40]. The Data Privacy
Vocabulary (DPV)12, GConsent [41], Data Use Ontology (DUO) [42] and smashHitCore [43] are just
some of the examples of ontologies focused on representing legal knowledge and supporting both
machines and humans in making sense of it. More recent work on the topic has been carried out in
the scope of the smashHit13 project, which has developed knowledge graph-based mechanisms for
automated consent [27] and contract [28] compliance verification for smart city and insurance-focused
sensor data sharing. The results have confirmed the benefits of semantics for process explainability and
optimised decision making. However, all these studies have focused on the challenge of performing
GDPR-compliance verification in centralised settings. In our case, we plan to explore how semantics
can be used to enforce GDPR in decentralised data sharing contexts and to provide clear specifications
of each decentralised actor’s roles in order to establish responsibility, ensure accountability and build
trust.
10https://solidlab.be
11https://ico.org.uk
12https://w3c.github.io/dpv/dpv/
13https://smashhit.eu</p>
        </sec>
        <sec id="sec-3-2-5">
          <title>2.2.5. Human Comprehension of Data Sharing</title>
          <p>
            Requesting and revoking informed consent in a GDPR-compliant manner, has turned out to be a
significant challenge for many organisations [ 27]. An undeniable challenge to this are also the
individual’s comprehension needs and awareness of the possible implications of blindly giving consent
[44]. Research [45][46] has shown that individuals are often unaware of what giving consent means
and the implications that follow. Helping individuals make sense of data sharing and the consent for it
through visualisations has been the focus of several studies (some of which this researcher has been
part of), namely [47][48][49][50][51]. However, there has been limited work on how, when (prior to or
post-consent has been granted) and what types of visualisations can be utilised to most efectively aid
individuals’ comprehension of decentralised data sharing [
            <xref ref-type="bibr" rid="ref9">9</xref>
            ]. Our prior research on data visualisations
to aid consent [50][49] and web cookies [52] comprehension has shown that diferent individuals have
diferent comprehension needs when it comes to their data sharing and legal rights thus we plan to
investigate various tools (including Generative AI such as DALLE14, Midjourney15) for personalised
and dynamic on-the-go data visualisation generations. An important perquisite is to know who the
end-user is, what type of comprehension needs they have and the context of data sharing.
          </p>
        </sec>
      </sec>
    </sec>
    <sec id="sec-4">
      <title>3. Use Case Exploration and Next Steps</title>
      <p>We have set to investigate several use cases for the implementation of this approach. Specifically, we
have identified two suitable use cases. Both of these use cases demonstrate the complexity and interplay
between legislation and technology (need for FAIR data and privacy-preservation).</p>
      <p>Use case 1 (UC1) focuses on data sharing for building digital product passports (DPPs) of personal ICT
devices (e.g. laptops, tablets, smartphones) that are major stream of focus in the Circular Economy (CE)
due to their increasing impact on the environment in terms of e-waste and need for critical materials
[53] [54]. A DPP can be viewed as collection of data about a device captured through its lifetime (from
material mining for manufacturing, use, end-of-life etc.) stored in structured and machine-interoperable
format [55]. In this use case, ICT data such as performance of the device at specific date, time and
location, however, and can be classified as personal, which leads to privacy concerns. DPPs should be
FAIR [18] but that should not be at the cost of privacy. Work on this has already begun on the Circular
Resource Planning for IT Project (RePlanIT)16, where the authors have build the RePlanIT ontology
[56] for ICT DPPs. Decentralisation of the DPPs (e.g. Onto-DESIDE17 project) is a possible solution that
improves ones autonomy especially when the entity using the device is not the sole owner of it. For
instance, DPPs for company-owned devices that are assigned to employees. The main challenges are to
preserve privacy and support individuals’ comprehension of decentralised data sharing for DPPs thus
preventing mistrust due to a lack of process transparency and explainability.</p>
      <p>Use case 2 (UC2) focuses on adopting decentralisation to facilitate trusted privacy-enhancing personal
data sharing for cases such as personalised AI tutor systems in university settings. In 2020, 54% of UK
universities reported a data breach [57]. Centralisation of the data has highlighted risks to students’
privacy, who are often unaware of how and where their data is stored and managed, who has access to
it and how it is used. Further, students lack control over the data itself. Decentralisation of personal data
can help preserve privacy and support the transparency of current data sharing and processing practices
within universities. The main challenges of this use case are raising awareness of decentralisation’s
benefits for students and the technical and human-centered implementation of decentralisation in a
way that minimises the student’s feeling of burden with regards to data governance. As next steps in
the implementation of the proposed DataPrInTs approach, we have set up the following goals:
• Derive a set of requirements for trusted decentralised data sharing based on interviews, co-creation
14https://openai.com/index/dall-e-2/
15https://www.midjourney.com/
16https://www.ams-institute.org/urban-challenges/circularity-urban-regions/circular-resource-planning-for-it-replanit/
17https://ontodeside.eu
sessions and analysis of relevant research in the legal, technology and human behavioural domains;
derive functional and non-functional requirements for data visualisations (e.g. UIs)
• Perform risk assessments for each use case; derive a set of technical and organisational measures;
investigate suitable PETs, select semantics for each use case
• Identify existing relevant ontologies and reuse when possible to semantically model diferent
context
• Ontologies, in combination with logic, can be used to represent decentralised data sharing policies
and agreements in a standardised machine-interoperable format
• Design and implement interactive visualisations such as graphs, tables and forms; based on
ifndings from co-creation sessions</p>
    </sec>
    <sec id="sec-5">
      <title>4. Conclusions</title>
      <p>In order to cultivate a trusted data economy in the future, digital infrastructures that promote data
sovereignty, enable greater data protection and reinforce individuals’ privacy awareness need to be
implemented. Motivated by this, we presented an outline of the DataPrInTs approach for decentralised
personal data privacy, interoperability and trust. Our interdisciplinary human-centered approach is
grounded in the utilisation of semantics to make data interoperable, make PETs context aware, and
of visualisations of consent and data sharing to ease individual’s comprehension and raise awareness
of personal data privacy in decentralised settings. Most importantly, with this paper, we aimed to
highlight important factors such as privacy and legal compliance afecting one’s trust in decentralisation
and foster further discussion and collaboration between the Semantic Web, Privacy, Decentralisation,
Human-Computer Interaction and Legal communities.</p>
    </sec>
    <sec id="sec-6">
      <title>5. Acknowledgments</title>
      <p>Anelia Kurteva is financially supported by the RePlanIT project funded by a Topsector Energy subsidy
from the Ministry of Economic Afairs and Climate Policy in the Netherlands. The author would like to
thank Ruud Balkenende and Alessandro Bozzon from TU Delft for their support and supervision.
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